The cleft team Kalpesh Bavisha - Restorative Dentist Michelle Warke - Clinical Nurse Specialist Eileen Cottrell - Clinical Nurse Specialist Rowena Rimes - Orthodontist Alice Mitchell - ENT Surgeon Roger Gray - ENT Surgeon Helen Smith - Paediatric Anaesthetist David Sapsford - Anaesthetist Renny Talbot - Maxillo-facial Technologist John Farren - Radiographer Fran Reade - Paediatric Recovery Nurse Brian Forrester - Operating Department Orderly Susan Burton - Lead Clinical Nurse Specialist Sarah Kelk - Clinic Nurse Tariq Ahmad - Plastic Surgeon David Adlam - Maxillofacial Surgeon Anna Zeffertt - Clinical Psychologist Wilf Kelsall - Paediatrician & Cardiologist Lizzie Gifford  - Network Manager Peter Nowak, Maxillo-facial Technologist Jennie Vitkovitch - Speech & Language Therapist Helen Swain - Cleft Unit Junior Sister Anne Harding-Bell - Speech & Language Therapist Juan Jose Blasco-Ramos  - Audit & Database Facilitator Alex Urquhart - Speech & Language Therapist Renny Talbot - Maxillo-facial Technologist Sue Burgess - Network Co-ordinator Jan Clark - Secretary Catherine Martin - Medical Photographer Cat O'Malley - Medical Photographer Victoria Squires - Clinical Nurse Specialist Victoria Parfect - Specialist Audiologist Per Hall - Plastic Surgeon

Kalpesh Bavisha

Restorative Dentist

 

My role in the Cleft Team as the restorative dentist is to provide advice and in some cases treatment to replace missing teeth or to reshape teeth with abnormal crowns.

 

I often work closely with the orthodontist and the oral surgeon.

Michelle Warke

Clinical Nurse Specialist

 

I am one of the Clinical Nurse Specialists working within the Cleft Nursing Team.

I have my own case load of children/families and the area I cover is Peterborough, Northampton, Kettering and Kings Lynn.

 

I will care for your child within the hospital and at home. I counsel and support parents following a diagnosis ante-natally and throughout the rest of the pregnancy.

 

If the diagnosis is after the baby is born, I would provide the same support and visit all families within 24 hours of delivery. After birth I continue this role, offering feeding advice and support on a regular basis. Following the first operation at three months I could see the child/families regularly or intermittently throughout the 20 year care pathway as the child grows and develops.

Eileen Cottrell

Clinical Nurse Specialist

 

I am one of the Clinical Nurse Specialists working within the Cleft Nursing Team.

I have my own case load of children/families and the area I cover is Luton, Bedford, Stevenage and Welwyn Garden City.

 

I will care for your child within the hospital and at home. I counsel and support parents following a diagnosis ante-natally and throughout the rest of the pregnancy.

 

If the diagnosis is after the baby is born, I would provide the same support and visit all families within 24 hours of delivery. After birth I continue this role, offering feeding advice and support on a regular basis. Following the first operation at three months I could see the child/families regularly or intermittently throughout the 20 year care pathway as the child grows and develops.

Rowena Rimes

Orthodontist

 

My job is to look after the development and alignment of the teeth. I am also involved in preparing the teeth for alveolar bone grafting (repair of the bony cleft) and for surgery to correct the bite in the late teens.

 

In practice this means fitting removable and fixed braces to the teeth.

 

Orthodontic treatment usually starts at 8 to10 years to prepare for bone grafting.

 

A second phase of fixed brace treatment usually starts in the early teens and generally takes about 2 years.

 

Fixed braces may be needed again prior to jaw surgery.

Alice Mitchell

ENT Surgeon

 

My role is to advise and treat ear, nose and throat symptoms.

 

Glue ear which affects hearing and ear infections and are common problems for children with a cleft palate. Most will ‘grow out’ of these, but in the early years usually need help in the form of grommets, hearing aids and antibiotics depending on the type and severity of symptoms.

 

I am based at Addenbrooke’s Hospital and work closely with Victoria Parfect, the Specialist Audiologist who tests the children’s hearing.

 

If you are not from the Cambridge area, we can arrange for you to see your local ENT surgeon for advice.

Roger Gray

ENT Surgeon

 

My role is to advise and treat ear, nose and throat symptoms.

 

Glue ear which affects hearing and ear infections and are common problems for children with a cleft palate. Most will ‘grow out’ of these, but in the early years usually need help in the form of grommets, hearing aids and antibiotics depending on the type and severity of symptoms.

 

I am based at Addenbrooke’s Hospital and work closely with Victoria Parfect, the Specialist Audiologist who tests the children’s hearing.

 

If you are not from the Cambridge area, we can arrange for you to see your local ENT surgeon for advice.

Helen Smith

Paediatric Anaesthetist

 

I am trained as a doctor specialising in anaesthetics and have further specialised in anaesthetising children.

 

My role is to make sure that children who come for surgery are well enough to have the operation. I keep your child asleep, pain free, warm and well hydrated. Afterwards I make sure that the pain is well controlled and your child is monitored well on the ward.

David Sapsford

Anaesthetist

 

I am trained as a doctor specialising in anaesthetics and have further specialised in anaesthetising children.

 

My role is to make sure that children who come for surgery are well enough to have the operation. I keep your child asleep, pain free, warm and well hydrated. Afterwards I make sure that the pain is well controlled and your child is monitored well on the ward.

John Farren

Radiographer

 

It is my job to ensure that your x-ray pictures on the TV monitor are of good and useful quality for the doctors to see and evaluate them.

 

You may come back to see me again as you get older to see how your speech is improving.

Fran Reade

Paediatric Recovery Nurse

 

The Paediatric Recovery Team care for your child after surgery to ensure thay are safe and comfortable before they retun to Ward D2.

 

When you first see your child in Recovery, you may be surprised by the monitors and drips that are still attached!

 

Children often stay quite sleepy after an anaesthetic, and you may find that your child has an oxygen mask over the nose and mouth: oxygen can help them to wake up.

 

Once safe and comfortable, your child will be given a bravery certficate before going back to the ward.

Brian Forrester

Operating Department Orderly

 

Alternatively known as Superman (or sometimes Shrek or sometimes Penfold!), Brian makes sure you get to the operating theatre on time.

 

When all is ready for you, Brian will come to the ward to escort you and your child up to the theatre suite.

 

After the operation and time in Recovery, he will escort you back to the ward.

 

You will if you wish be able in most cases to carry your baby up to the theatre in your arms rather than have it travel in the cot. Older children travel on their own hospital bed.

Susan Burton

Lead Clinical Nurse Specialist

 

I lead the delivery of care by the Cleft Nursing Teams both at Addenbrookes and throughout the Network.

 

I maintain clinical input with my own caseload which assists with developing and strategically planning the service to continually improve the child/family journey. I also teach and update the plethora of professionals involved with cleft care.

 

The area I cover is Cambridge and Huntingdon.

 

I counsel and support parents following a diagnosis ante-natally and throughout the rest of the pregnancy. If the diagnosis is after the baby is born, I would provide the same support and visit all families within 24 hours of delivery. After birth I continue this role, offering feeding advice and support on a regular basis. Following the first operation at three months I could see the child/families regularly or intermittently throughout the 20 year care pathway as the child grows and develops.

Sarah Kelk

Clinic Nurse

 

I am the the Clinic Nurse and I look forward to meeting you when you visit our clinics at Addenbrooke's.

 

As well as weighing you and measuring how tall you are, I will never be far away while you are in the clinic: I will show you round and help you in any way I can.

Tariq Ahmad

Plastic Surgeon

 

My job is to see new babies with the nurses, to explain to their parents about the surgery, to arrange the time for the operation and then do the surgery.

 

I will usually first meet parents in the clinics we provide on the west side of the region and follow up after the surgery will also be at the clinic closest to home.

David Adlam

Maxofacial Surgeon

 

My role in the Cleft Team is to look after secondary cleft problems.

 

This means I have trained as a dentist as well as a surgeon and specialise in the problems related to cleft lip and palate requiring treatment after intitial surgery.

 

The repair of the bony defect in the upper jaw (an alveolar bone graft) would be one of the first operations at about 8-10 years of age.

 

Subsequent surgery would be jaw corrective surgery to reposition the jaws should this be necessary at approximately 17-19 years of age.

Anna Zeffertt

Clinical Psychologist

 

Children and their families often have fears about hospital procedures, or they may have other anxieties, and it is my job to support them when the Cleft Team asks me to help.

 

For some children, looking or sounding different may lead to self-esteem problems or - worse - bullying.

 

Talking this through and thinking about solutions really helps - and this can be done individually or in groups.

 

I also offer a range of other services, ranging from formal cognitive assessments for learning difficulties to helping with decision making about plastic or oral surgery in late adolescence or adulthood.

Wilf Kelsall

Paediatrician & Cardiologist

 

My role in the team is to ensure that all the medical needs of babies with clefts are looked after properly.

 

In the clinic I will discuss general health issues with the team and where needed I will try to ensure that a local paediatrician becomes involved in your baby's care.

 

We weigh and measure babies to make sure they are growing normally - sometimes babies need special calorie rich milk to help them grow.

 

One of my main roles is to ensure that the children are fit for their anaesthetic: this involves a heart scan (follow Toby's story for more information about heart scans).

 

Between us we will ensure that your baby achieves his/her full potential.

Lizzie Gifford

Network Manager

 

I am responsible for the overall Cleft Service, ensuring that the service runs smoothly, that we keep to budget and that any problems are solved.

 

I manage one other Surgical department as well, so I am kept very busy balancing all of their needs.

Peter Nowak

Maxillo-facial Technologist

 

Maxillofacial Technologists provide technical services to both clinicians and patients.

 

Our involvement begins with the recording of cleft lip and palates in new born babies, through to the manufacture of orthodontic appliances and ultimately orthognathic wafers should corrective surgery be required.

Jan Clark

Secretary

 

I provide secretarial support to the Speech and Language Therapists in the Cleft Team.

 

I work part-time on Monday, Tuesday and Thursday from 8.00 to 4.30. I can be contacted on 01223 596265

 

Please do ring me if you wish to speak to either Dr Anne Harding-Bell or Alex Urquhart or if you want to leave a message for any other members of the team.

Victoria Parfect

Specialist Audiologist

 

Children born with a cleft palate have an increased risk of suffering from ear problems and may experience some problems with their hearing. I will see you at the pre-admission clinic and test your child’s hearing.

 

If you live within the Cambridge area I will see you for hearing tests after the palate operation; if not, I will organise for your child to be seen at your local audiology department.

 

All children born with a cleft plate will have their hearing checked at three, five and ten years of age. Regular hearing tests will be arranged by your local hospital but if you have any concerns please contact me through the Cleft.NET.East team at Addenbrooke’s Hospital.

Sue Burgess

Network Co-ordinator

 

My main role is to arrange operation dates for surgery, appointment dates for the cleft clinics and to help sort out any queries patients may have.

 

If you 'phone the cleft offices at Addenbrooke's, it is probably me you will speak to.

 

I am also secretary to Mr Hall and Mr Ahmad.

Renny Talbot

Maxillo-facial Technologist

 

Maxillofacial Technologists provide technical services to both clinicians and patients.

 

Our involvement begins with the recording of cleft lip and palates in new born babies, through to the manufacture of orthodontic appliances and ultimately orthognathic wafers should corrective surgery be required.

Jennie Vitkovitch

Speech & Language Therapist

 

I lead the speech team on the East of the network.

 

I have a post graduate qualification in the study of cleft speech.

 

I am interested in early intervention and my particular interest is in overcoming problems associated with cleft palate and hearing loss.

Helen Swain

Cleft Unit Junior Sister

 

I am a nurse who cares for children who need to have surgery. I run a cleft pre-admission clinic which is where children and their parents visit the clinic before their operation.

 

Some of my patients are children with a cleft condition. I prepare them and their families for the operation, and stay with them until the patient is anaesthetised.

 

Back on D2 after the operation I give child medicines like Calpol and Junifen to help keep them comfortable and I help to make their stay on the ward a happy one.

 

Once the child has gone home, I follow up by phone to check that they are well.

Anne Harding-Bell

Speech & Language Therapist

 

I lead the speech network.

 

My PhD is in cleft palate speech and I am involved in providing training for specialist Speech andlanguage Therapists.

 

My vision for the speech therapy team is to equip children to be confident speakers by the time they start school.

Juan Jose Blasco-Ramos

Audit & Database Facilitator

 

I hold a Bachelor´s degree in Computer Science and therefore I have a sound background in IT and programming.

 

My role is to administer the in-house Cleft Lip & Palate database as well as the data entry processing, retrieval of information and generation of bespoke reports.

 

I cooperate with other members of the team and hospitals within the network to facilitate the development of audit within each clinical speciality.

Alex Urquhart

Speech & Language Therapist

 

I joined the team in 2005.

 

I joined the team in 2005.

I see children in the Cambridge and Luton region during their early years and work closely with the orthodontist and the maxillofacial surgeon in their care of older children and teenagers.

 

I cooperate with other members of the team and hospitals within the network to facilitate the development of audit within each clinical speciality.

Catherine Martin

Medical Photographer

 

Medical Photographers work all round the hospital, photographing patients for records, diagnosis and teaching.

 

When working with the Cleft Team, I am responsible for getting good photographic records of all the stages of the growth and treatment of children with cleft lip and palate.

Cat O'Malley

Medical Photographer

 

Medical Photographers work all round the hospital, photographing patients for records, diagnosis and teaching.

 

When working with the Cleft Team, I am responsible for getting good photographic records of all the stages of the growth and treatment of children with cleft lip and palate.

Victoria Squires

Clinical Nurse Specialist

 

I am one of the Clinical Nurse Specialists working within the Cleft Nursing Team.

I have my own case load of children/families and the area I cover is Bury St. Edmunds, Norwich, Great Yarmouth and Ipswich.

 

I will care for your child within the hospital and at home. I counsel and support parents following a diagnosis ante-natally and throughout the rest of the pregnancy.

 

If the diagnosis is after the baby is born, I would provide the same support and visit all families within 24 hours of delivery. After birth I continue this role, offering feeding advice and support on a regular basis. Following the first operation at three months I could see the child/families regularly or intermittently throughout the 20 year care pathway as the child grows and develops.

Per Hall

Plastic Surgeon

 

I was appointed as a Consultant Plastic Surgeon with a special interest in Cleft Lip and Palate at Addenbrooke's in 1996 and since the reorganisation of Cleft Lip and Palate services in 2003 I have been the Lead Clinician for the Addenbrooke's based service.

My job is to see new babies with the nurses, to explain to their parents about the surgery, to arrange the time for the operation and then do the surgery.

 

I will usually first meet parents in the clinics we provide on the East side of the region and follow up after the surgery will also be at the clinic closest to home.

 

I am already seeing some of my 10 year olds and hope to see most of my patients until they are 20 years of age.